Definition shmefinition 😜
I heard someone describe my cancer as an event that hit me out of the blue, this is not entirely true, I had symptoms of something gone...
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Like Sammy Hagar, I can’t drive 55…
How is it possible for me to lay on the couch for a majority of the last 3 years and now I am massaging people (2 so far)? I know 2...
Hey Cosmo, you’re gonna die…
One of my favorite scenes from the movie “Moonstruck” https://youtu.be/kBWxqcvH7Dk I had a woman ask me recently upon finding out that I...
The long and winding road.
I am a dreamer but also a pragmatic person, always picturing and hoping for a better future BUT with the thought that if I died before...
So they said there’s a chance…
My CT scan experiences are usually a bit of a mixed bag but this was the first one that I was looking forward to. The technician brought...
The sun will come out tomorrow…Maybe.
Tomorrow I will have a CT scan, the first since starting the clinical trial. I will see my oncologist on Monday when I spend the whole...
Where do we go from here?
I have had the song this blog post is titled after from the musical episode of Buffy The Vampire Slayer “Once More With Feeling”...
It’s not about winning or losing, this is not a game.
A sentiment that I hear or read regarding people with cancer is often something related with sports or war such as “You are going to...
If I stay really still maybe I will keep feeling good…
I keep knocking on wood because the other shoe has not dropped and I am continually feeling better. I want to believe that this is not...
Slow, steady and thinking too much…You’re welcome? 🤷🏻♀️
I have been waking up in the morning feeling almost normal, fantasizing about getting ready for a full day of massaging people like I...
Small victories
Today I had my second appointment with the research nurse who is in charge of the clinical trial that I am participating in. After having...
Still feeling good 😳
Before I got really sick and was diagnosed with cancer I was a person who loved to go to karaoke bars. I even was a part-time KJ for a...
A good day (FINALLY 😜)
We were lucky enough to attend the 100th birthday party of Charles beloved great aunt Ethel. Covid protocols were followed and it was so...
Knock knock on wood.
I haven’t had a fever in 5 days! Today is number 6 and no fever has presented itself thus far after months of nightly low grade to a...
Goopy but not fevered
After my mild panic last week and then a bunch of miscommunication with my medical team, everything seems to be calm for the moment. I am...
The path is uncertain but I walk it just the same
Today has been one of THOSE kind of days in a series of not much happening sort of days. I don’t want to burden you with the gawd damn...
Trial day!
I am writing this from the infusion clinic at the hospital. Check-in was at 7:30 am, a brutal time for a somewhat retired person such as...
I passed! All systems go!
I had the eye exam yesterday that would either qualify or disqualify me from the cancer trial. At the end of the exam the doctor said “I...
State of suspended animation
Not much going on here as I wait to (hopefully) start the trial next Monday. I feel mildly permeated with a general state of malaise as I...
AND SO…It begins…
I finally received the call that all systems are a go on this clinical trial I am excited about. I got the last spot out of 200 spots...
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