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Foregone conclusion

“One day it will be that time to make THOSE decisions.” Said the nurse practitioner with a meaningful look, who was seeing me instead of...

I am the ocean

I just went off of steroids last Friday yet I woke up with a huge puffy face and my neck so swelled up it was a bit challenging to...

Riding the dragon

I had a thought when I was in the ER last week that what I am experiencing is the head of the dragon and as it works through me things...

Waiting for my energy to come back.

If I was a video game or a cell phone my power indicator would be at 25%. I don't like feeling weak when all my life I have been...

Finally, sleep is happening!

Bad reactions to my last trial, a trip to the ER, my ostomy stoma Klaus hulking out, my dog dying, literally not a drop of sleep for 5...

So tired…Still.

I started the clinical trial today. It's also my 4 year cancerversary this weekend. Charles made a video to commemorate our year....

Slowly coming to the surface.

I was lucky enough to get to the beach this weekend, even as exhausted and sad as I was, I felt I needed to be somewhere near the ocean....

Finally feeling human.

7 days of literal no sleep is not a recommendation I would ever have for anyone. On the third night I composed many songs but only in my...

Coming back from the depths.

Today was the first day I changed my ostomy bag and Klaus was not the size of a baseball, he looked his normal self, I wanted to hug my...

Late but I am gonna do my best

I still haven't slept a wink in 3 days. This is not an exaggeration. I was given steroids to get even more swelling down and it has...

Next.

I am in a new clinical trial and this time my oncologist is excited about it. This last one was a place holder and I developed an allergy...

Welcome to “The Shit Show”

Hi! Thank you for coming, I hope you are having a better time than I am but if not, hang on and let's try to get through this...Also,...

Wow! What a week…Or longer….Who am I ?

I am writing this just hours after cataract surgery on my left eye after a couple of weeks digging myself out of severe anemia (still...

Taxes are done and I am still here.

As I write this I am getting another Iron infusion. This one was not planned but my doctor is hoping to get me up to a 12 eventually and...

Ladies and gentlemen, for the first time…

Due to the tax deadline tomorrow and the fact that I didn't feel well enough to attempt to start them until...Well, now (and that may be...

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