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A Twisted Twist

I had a feeling when my nurse couldn’t flush the line to my port before she attached the chemotherapy pump that I would be back 😳 “Well, it flushed and I got a blood return for your initial chemo...This should be fine. Just call if there are any problems.” When the alarm on my pump went off sounding like a cop car in the UK at 6pm yesterday I got a little pissed. “High Pressure” the pump displayed. I called the infusion center and it was closed, I was referred to the on-call oncologist who confessed that she knew nothing about the pump, I had to come in the next day (today) and have the problem corrected. It was as simple as one of the clamps on the line was not clamped, my nurse dropped the ball on this one and I learned my lesson, next time I am not leaving until my port is working properly. Now I can’t have the pump removed until Saturday, a day later than originally scheduled, this is not cool.

It is important to advocate for yourself, being saddled with a serious illness is a good time to pull those big person britches up and ask questions, I dropped the ball yesterday because I felt crappy and it was an 8 am appointment, I can’t afford to do that, luckily this wasn’t that big of a deal but still, it is important to not be complacent. Unfortunately during COVID times, when you feel extra crappy it is hard to get your people to advocate for you because they can’t go with you, an even bigger reason to stay diligent. I felt like I was constantly battling ninjas when I last stayed in the hospital, it can be truly exhausting.


A friend brought us Chinese food today, that made life shine up a little! It was good Chinese food too. I feel a bit better, I suspect the steroids for this result but hope it is more than that. I listened to music, flirting with the idea of competing in air guitar this year, we will see. Don’t count me out yet but I refuse to half ass my performance so we shall see. Random thoughts/A manifestation:


I wish the murders and unnecessary hate would stop.


I wish my wishes had the power to make our world better.


I wish I didn’t ooze puss like it was my full-time job. I look forward to when this becomes a distant memory.


I look forward to being a part of real positive change in our world.


I look forward to the day when I don’t have active cancer anymore.


And so it is and so it shall be, amen and blessed be.


Thank you for keeping me company and listening to my ramblings and witchy fantasies as I navigate this river and the murky forest, it helps. My love to you.


Until next time ❤️





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