Kara Muir

Apr 14, 20232 min

Anemic says what? What?! Oh yeah…what.

Jeez, you don't know how important your hemoglobin is until it is really low...I feel like the floor is lava and I only want to lay down on literally anything, even the lava. The smallest task is monumental as my heart wavers on the beat and my breathing is a bit harder. Even holding this IPad in order to one finger type is pushing it for me right now and I still need to clean the bathroom of our Airbnb. That being said I feel better in other ways and I am hopeful.

Yesterday I was at the hospital for my clinical trial for 11 hours, this was for regular tests and observation as well as an iron infusion and extra fluids. I struggled to stay awake for a lot of this and napping is not my normal inclination. A nurse who happens to share a first name with me woke me up for vitals by gently rubbing my back. We talked for a bit as I came to and she told me that people who participate in clinical trials are a special kind of hero. This was nice to hear but I asked her what other choice did I really have? "You think that because of the kind of person you are. Not everyone chooses this and you are helping so many others." At least there is that, I tell myself that no matter how this plays out, it will be worthwhile in some way...I am truly hoping for a win/win though.

*Side note: If you choose not to go into a clinical trial that is a choice you make for whatever reason you have and I respect it. Sometimes we don't have anything else to give, sometimes we just get tired and sometimes we are just done. Science will still plow ahead.

I still have to do my taxes 😬😳🙄

Until next time ❤️

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