I have been laying around a lot, an inspiration for my blog title. Since starting immunotherapy I have experienced almost nightly fevers in varying degrees. Most of the time it has stayed in the low grade between 99 and 100.9 but usually 2 days after an infusion there would be a spike to over 101, often peaking around 101.8 at which point I would pop a Tylenol and the fever would resolve within 2 hours. Now, as the immunotherapy is working out of me I still have fevers between 4pm and midnight but they have been going back to normal fairly quickly comparatively and are often back to normal way before midnight even. In a weird way I am an amateur scientist who studies my own Petrie dish. My medical team is great but nobody is going to keep track of these things like I will, I have found it important to be interested in the patterns especially when it would be easy to fear such things. I really hope these fevers keep fading and will eventually fade out completely along with the yeast factory in my body.
The coordinator of the study I am hoping to get into, called me last Friday at around 5pm. She had found me in a list of patients that qualified for the trial due to a mutated gene…Not gonna lie, I weirdly felt a little special. I can’t share a lot of the info as it needs to stay confidential but she said I have a spot in the study, we just have to wait for the sponsors of the study to release “approved consent”, hopefully I will get this in the next 2 days at which time I will go to the hospital and sign the consent as well as make a bunch of appointments. Being a part of a trial can be intimidating as you basically volunteer like a tribute from The Hunger Games but at the same time, there are a ton of cancer treatments that are FDA approved that will do it’s best to destroy a person SO, it’s not so bad OR it’s equally bad, ha! I am hopeful this is the one for me.
Until next time ❤️
It's at times like this (and, not gonna lie, so many other times as well) that I really feel the loss of my mom, who died last February. See, I'm not a religious believer, technically speaking, but sometimes the proof is just in the pudding, and she was a CHAMPION at prayerful intercession.
Her batting average in terms of my friends alone was shockingly good. Everything from cervical cancer to a baby with a three month plug of fecal clay lodged in his colon to a friend who received multiple gunshot wounds to his torso for being in the wrong place at the wrong time. I would call her up and she would go to her "second" church (on Sundays…
Awesome news!!!! Congrats on being in the trial!!! You forgot one possibility though. The trial treatment could work BETTER for you than an FDA-approved one :-) ❤️