top of page

Quality of life, whaaat?

My oncologist likes to say, "We want you to have a good quality of life." I hear this during every visit while my health care team gauges my neuropathy, fatigue, and other symptoms on the menu that day.

From people in general, I get the message that just to be alive is the goal. In terms of treatment, that can present some really unattractive packages that I do not even want to delve into. Let's just say my goal is to have some fun while I am still corporeal and able. Speaking of...I have signed up to do a belly dance performance for Offbeat Bellydance on January 17th!

This both horrifies and spurs me on to challenge myself--because cancer and a newly fractured sit bone isn’t enough, ha! With a CT scan scheduled for December 30th, my hope is that I can postpone further treatments (depending on the results) until after my performance because THIS is quality of life for me.

Performing, creating... It isn’t enough for me to lie on a couch and binge watch old seasons of “RuPaul’s Drag Race” (because I kinda want to live that drag kind of life). Fingers crossed I can make this happen.

What would make YOUR quality of life better? Don’t wait to have some catastrophic disease or event to figure that out!

Have a wonderful holiday season, my friends.

60 views0 comments

Recent Posts

See All

The last few weeks have been challenging... Really the last few months haven't been all that great. Friday morning I woke up to massive bleeding out of my wounds and I am not exaggerating, it was a bi

I saw my surgeon again, I did this because of the pressure I have been feeling in my bum these past few weeks. Apparently it's my tumor spreading its bloody wings. My cancer is inoperable, of course t

My sleep has been pretty bad for the last couple of weeks, I hate it when I can’t sleep. I spend a lot of time making up stories for what is happening inside of my body. I have developed a new pattern

Post: Blog2_Post
bottom of page