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Immunotherapy #3

If you have read the previous posts you will know I have had my issues. Nausea and constipation, excessive nerve pains in my open wounds but please, let me introduce you to skin crawling restlessness 😳 I told you I was my own mystery, me, my own body detective.


The morning of my appointment I felt the latent call of that sick/sour feeling that is nausea, just a little bit, a whisper. My doctors had really encouraged me to preemptively take the medication so I did, this was a different drug than my Zofran, which can encourage constipation. I had started feeling restless a few days ago, not a useful restlessness, more like ā€œI need to lay down, I can’t get comfortable, I feel too hot or too coldā€¦ā€ You get the idea. Relief can finally be felt after a cannabis gummy kicks in when I am in this state (less potent than a 3rd of a gram of RSO.) I was delivered to the hospital by my lovely ride, the whole time swimming in my seat, too hot, too cold, just uncomfortable. I dragged myself to the National Guardsperson who took my temperature and listened sternly as to whether I had COVID symptoms and was a patient (there are no visitors to the hospital AT ALL 😳) Unless they make an exception for cancer appointments but you don’t get visitors if you are admitted into the hospital and that’s a fact right now.


When I showed up in the Cancer Center I had come to a realization…Or perhaps a deduction my dear Watsons, the new medicine…KILLED THE BUTLER IN THE LIBRARY WITH A CANDLESTICK! No really, the medicine made me want to kill something with a blunt object, namely this asshole feeling that I was having, the feeling was perhaps a side effect 🧐 I checked in and sat by the window. A couple came in, I felt it was a first appointment (a reason for a visitor exception) ā€œWow, what a beautiful view.ā€ They dreamily stared at the scenery from the 11th floor, when I said ā€œYup, almost makes you glad you got cancer.ā€ 😳 My filter has been radiated and chemo’d outta me and at least in the cancer center waiting room and infusion room, I am a fucking stand-up comic apparentlyšŸ™„ The couple laughed a little, whether they thought I was funny or crazy, I am not sure, I got up and started pacing…Probably crazy.


I was led to the Infusion room to get my blood work first, the chair I had to sit in unable to feel comfortable. The staff noticed my unusual behavior and I told them my theory ā€œLet me check with the pharmacist.ā€ Said one nurse…Bingo, though rare you can definitely get the constant heebie jeebies and along with helping nausea this medicine is an anti psychotic, fun fact 🧐


My doctor told me that my numbers were all good and she was encouraged that the immunotherapy might work for me but that I had to gain weight ā€œHow much did I lose? It couldn’t be THAT much.ā€ I had lost 8 lbs in two weeks though I have been fluctuating 10 lbs since I gained up from the 139 lbs that was my low in this parade. ā€œJust gain 2 lbs at least.ā€ She stared at me hard and meaningfully ā€œYou need to stay positive. More good people need to live. You need to live.ā€ Point taken, I said I would do my best. She approved me for another immunotherapy and I was escorted back to the infusion room where I waited to be plugged into the IV. Someone lent me a fan and I huddled under my sweatshirt shooing away the kind offering of a warm blanket, this balanced out the HB/JB’s and I was able to weather it out of my system by the time I was done.

Today was a mixed bag but slowly I am inching towards the finish line with the pug monster coloring and story book that I am illustrating and Charles is writing, another collaboration I will be super excited to share when I am able to!


Until next time ā¤ļø





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