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Anemic says what? What?! Oh yeah…what.

Jeez, you don't know how important your hemoglobin is until it is really low...I feel like the floor is lava and I only want to lay down...

What the hell was that?!

I woke up drained today, literally and figuratively. I was getting ready to work a few hours in the office I work at 2 days a week and...

Clinical trial #2

I feel upbeat about this trial. It is another targeted medicine but the target is not as specific. A friend dropped me off for my first...

Ready, set, go, go, go!

I got the word this morning that this latest trial is a go and it's a relief to know that I will be doing something. I arrive Wednesday...

Feeling testy

Today was my liver biopsy. I was told that it's a fairly easy procedure and I guess that's true enough, though having to wake up by...

Treading uncertainty

The last few weeks have been challenging... Really the last few months haven't been all that great. Friday morning I woke up to massive...

The inside of me.

My sleep has been pretty bad for the last couple of weeks, I hate it when I can’t sleep. I spend a lot of time making up stories for what...

We can’t always get what we want

I did not qualify for the clinical trial I was supposed to start next week due to low albumin levels. I ate the appropriate amount of...

OxyCo-NO!

Well, I finally let the doctors write me a low dose prescription of an opiate to make the pressure in my bum magically disappear 😳🙄 I...

The beginning of a new beginning.

Clinical trials are interesting. I felt like I was on a date as I was constantly asked for my consent regarding different aspects of...

Here we go again…Again.

I received the message from my doctor yesterday regarding my CT scan earlier that morning "Due to significant growth between January and...

Existing in between

My abscesses are draining and I feel a bit better and less fevery. My energy is about half a tank but that's not too bad considering that...

Double trouble.

What's better than one abscess? Seriously, it's almost funny that after the left side erupts the right had to show that it was cooler and...

Waiting again.

I had a Zoom appointment with my oncologist early Friday morning and I forgot how nice it was to see her face. She asked me if I had read...

Decisions, decisions…

Tomorrow I talk to my doctor via Zoom at 8:30am and I don't know how I feel about it. It's been nice to have almost a year of stability...

Absolutely abscessed with my butt

Welp, I was right about Vesuvius 2 erupting on my ass. I am still working stuff out but I feel better than last week. This morning I had...

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